Update for July 16

We did finally get Dustin's lab results by his Dr's office, all they were going to tell me was his potassium was low and double his potassium for 3 days.  Before she hung up I was yelling wait what was his BUN, creatinine, and GFR, oh they' re ok, she says and hangs up.  I'm a nurse I've been in her position over 100 times, it's after 5:00, the Dr did not write any thing else so therefore it is all is good.   But me, the neurotic, crazy patients wife on the other end of the phone wants to jump through the phone drop kick you, ring your neck and look at the labs my self ( all the while hearing my mothers voice in my head to hide my crazy and act like a lady)!!!  Well I knew they should be on the computer any minute and Dust and I could check them out ourselves.  We waited all night and until noon the next day, I finally called our favorvorite receptionists and told her our problem, after an hour our labs were on the computer and we were not happy.  His BUN was lower, creatinine was higher and his GFR was lower.  Of course not what we were told!

Dust is now sleeping 20 hours a day eating when I remind him.  My 93 year old grandmother made him some potato soup which he loves, no one else allowed to touch it!

His next blood work is next Friday and we go to Tulsa on the 25th.

My seizures are getting shorter but still about the same.  Any one know of a trailer a 1/2 ton could pull we could borrow for a 2 weeks to a month so we could go to Colororado, let me know.  Promise to take very good care of it :-) pretty sad when ur 42 and feel like your 92 and to know there is something that will make you feel better (proven by studies) bu since you I've 18 you can't have!!! It really make me angry not for just me but also Dustin he has lost so much weight this would take his nausea away, right now that is 75% of his problem.  For that people that are against it come to my house for a day! Sorry I'll get off my soap box.

We have found that Bean does not leave my side during a seizure, I knew he was with me during the complex partial seizures (I'm aware during those but cannot comunicate). We have now noticed he is warning me, he lick my arm and if I do not respond to him he starts licking my face ( he knows I don't like that).  My own service dog.. Lol

Spell check will not work , sorry!!      

Love

Delana