Update July 13

Dust and I went to the Dr, we see the same one just different reasons.  He's a Hematologist/Oncologist so he gets to figure out why I have blood clots and he takes care of Dustins  cancer issues.  My visit was you're doing great but why r y having seizures? If I had that answer we would all bee happy, so I got the speech about hitting my head then we moved on to the real problem in the room.  Of course his labs weren't back from when we had them drawn (and I hand an seizure poor pholbotomist it think I scared her to death and it was a small one).  Anyway the Dr just told Dust to rest and they were going to make him an appt with nephrologology.  So we just sit and wait and  San neither of us do that very well.

Dustin just pointed out to me his CML is not on Beanfords World.  Long story short, I was I the hospital and he just kept loosing weight.  When Dr S.  Came in I talked to him and he asked him to come in that day for some tests.  He did normal chest X-ray and blood work and the next morning cane in my room with Dustin there to tell us to get to Tulsa it looked like he had leukemia .  Honestly it just all becomes a blur after a while.  We would have stayed in Tulsa but his Dr was moving back to Nebraska to be closer to family.  But he said his CML shouldn't be any problem and if we wanted to have my hematologist follow him it should be just fine.  Well it's not fine any longer.

I apologize for this if it is hard to read I've had 2 seizures today and having a hard time waking up.

Also, I really would like everyone's opinion on this, u can pm me if u want. I'm on a lot of seizure meds, so I called my nurse and asked about Cannibus oil, she said I was under 18 she could get me oil, smoke, baked goods or whatever I wanted and it actually worked!!!! But since I was over 18 keep up with the meds or move or find a trustworthy person who will sell me some !!!!! My jaw was on the floor!!!!

Love
Delana